The Global State of Pernicious Anaemia Awareness
This month’s blog post comes from our Trustee and USA based support group co-ordinator Julie Wichlin. Julie is actively involved in lobbying for improvements in raising awareness, education and better...
View ArticleReport on the Survey on B12 Prescription Costs and Access
PAS conducted a survey this year focusing on NHS England Prescription costs and vitamin B12 injections, attitudes to self-administration and the financial burden. PAS is collating evidence to better...
View ArticleWhy “Jess’s Rule” is a Vital Safety Net for Pernicious Anaemia Patients
Image from Jessica Brady CEDAR Trust This blog post highlights a tool which people based in England who are struggling for a diagnosis with their GP can consider raising as part of a constructive,...
View ArticleManaging Your Diet with Pernicious Anaemia and Autoimmune Gastritis
This month, we are reviewing our essential member helpsheet on Autoimmune Disease and Diet. This comprehensive guide was written and reviewed by our CEO, Katrina Burchell, and Expert Advisory Board...
View ArticleFrom Silly Rules to Sensible Care
This month’s blog post is written by our CEO, Katrina Burchell, reflecting on PAS’s upcoming contribution to the B-12 Alliance Parliamentary Reception which aims to put an end to the Silly Rules and...
View ArticleThe Science of Vitamin B12
This month’s blog post from our CEO Katrina Burchell is about the science and manufacture of vitamin B12 and explores how manufacturers harness micro-organisms to create the supplements and treatments...
View Article100 Years On: Pernicious Anaemia – from Raw Liver to Today’s Still‑Troubling...
This month’s blog post sees our CEO, Katrina Burchell reflect on how far, or not, patient’s treatment for Pernicous Anaemia has come since 1926. In a recent feature on notable medical anniversaries of...
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Rethinking Pernicious Anaemia: Insights from My PhD Research
Over the past few years, my PhD research has focused on understanding the many complexities of pernicious anaemia, including why symptoms vary so much and why current treatment does not work for...
View ArticleThe “Half-Life” of Pernicious Anaemia: Why Patient Voices Matter
A new study published in the Journal of Rare Diseases shines a much-needed light on the lived experience of Pernicious Anaemia (PA). For many in our community, the findings won’t come as a surprise,...
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We can reduce the loneliness of living with autoimmune disease by making...
This month’s blog post is from Nicola Chantler, Head of Communications at the Wren Project. Here she shares the difficulties of not being listened to when living with a chronic disease, in an...
View ArticleHow Three Nobel Prizes, Spanning a Century of Discovery, Help Define the...
In this month’s blog post, our CEO, Katrina Burchell, explores the impact of Nobel Prizes on Pernicious Anaemia and what the future might hold for this lifelong autoimmune condition. When the Nobel...
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Oral Implications of Pernicious Anaemia
This month’s blog is written by a Dentist. Recently several of our members mentioned that they had a more positive experience talking with their dentist about their PA than their GP. It reflected our...
View ArticleWhy Your Vitamin B12 Injection Remains Prescription-Only in the UK
For thousands of people in the UK living with Pernicious Anaemia (PA) and other B12 deficiency disorders, the need for regular hydroxocobalamin injections is a lifelong reality. But why does this...
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Vitamin B12 levels in children
A recent publication in the British Medical Journal posed the question “Do high vitamin B12 levels in children matter? Whilst this paper is not available to the general public our valued colleagues in...
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Artificial but not intelligent? Asking the simplest question
This month’s blog is by Prof. Bruce Wolffenbuttel, a long time supporter of PAS and previous popular blog post contributor. At the end of the year and before PAS enters into its 20th year in...
View ArticleWhen It’s Not Just in Your Head: The Mental Health Reality of Pernicious Anaemia
You go to therapy because something feels wrong. You’re tired, but it’s more than that. You’re anxious, but you don’t know why. Some days you cry for no reason. Other days, nothing touches you at all....
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The Great Evasion: Are Politicians Afraid of Straight Answers?
This month, our CEO, Katrina Burchell, reviews the questions raised in UK Parliament about Pernicious Anaemia and B12 deficiency. Her findings show that despite decades of parliamentary debate, little...
View ArticleB12 Injection Delays: Navigating UK NHS Bureaucracy
This month’s blog post is from our Chief Executive Officer, Katrina Burchell, who, as a patient, often experiences the same less than perfect treatment for Pernicious Anaemia that our members...
View ArticleDuty of Care Denied: The Hidden Struggle of Chronic Illness Patients Fighting...
This month’s blog post is from Julie Wichlin, our support group co-ordinator in the USA. She shines a light on the shocking inequality between how conditions like diabetes and PA are treated – despite...
View ArticleMore Than Just B12 Deficiency: The Hidden Chaos and Bizarre Symptoms of...
This month’s blog post is another different perspective from Julie Wichlin, our support group co-ordinator in the USA. Based on a recent discussion with her engaged support group Julie takes a look at...
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