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The results are in! We have the Top 10 Research Priorities for Pernicious...
Following the Pernicious Anaemia James Lind Alliance Priority Setting Partnership (PSP) workshops, we now have our Top 10 Research Priorities; questions that patients, clinicians and other healthcare...
View ArticleBringing about change
Raising awareness and facilitating communication and research Bringing about change is the focus of the Pernicious Anaemia Society. To do this, the PAS liaises with outside agencies of various kinds to...
View ArticleOne History of Pernicious Anaemia
You will note immediately that I have done two things in the title, 1) to use the word ‘one’ rather than ‘a’ or ‘the’. I make no pretence that this article is a definitive history of this condition and...
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The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and...
Our guest blogger this month explores the important topic of diagnosis and treatment through patient experience. This is particularly relevant today as it is increasingly difficult to get face-to-face...
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Only One Chance
Introduction It’s an old saying: “You’ve got only one chance to make a first impression”. This is true for many situations: when you meet your future spouse, or when you are in a job interview, or...
View ArticleDr Joseph “Chandy” Kayyalackom-a Reflection
Dr Joseph Alexander “Chandy” Kayyalackom (1941-2023) -a Reflection The end of 2023 bought the sad news of the passing of Dr Chandy, a well-known name to those of us involved in the world of B12...
View ArticleBridging the Gap: B12 Deficiency from Research to Patient
This month, we are delighted to feature a blog authored by Julie Wichlin, our dedicated US Support Group coordinator based in Chicago. Within the narrative, Julie intimately shares her personal...
View ArticlePAS Statement on the Publication of the NICE Guideline
STATEMENT FROM THE PERNICIOUS ANAEMIA SOCIETY ON THE PUBLICATION OF THE NICE GUIDELINE Vitamin B12 deficiency in over 16s: diagnosis and management 6th March 2024 The Pernicious Anaemia Society...
View ArticlePernicious Anaemia: A Misnomer? Exploring the Pros and Cons of a Name Change...
This month’s guest blogger is Alfie Thain, a graduate in Nutrition and Dietetics and postgraduate research student in the School of Biosciences, Faculty of Health and Medical Sciences at the University...
View ArticleHow to judge the absorption of B12
This month’s blog post is about the Schilling Test. The Pernicious Anaemia Society frequently gets questions about this from our members and many hark back to ‘the good old days of the Schilling test’...
View ArticleImagine a World Without Research: A Glimpse into Stagnation and Darkness
I was on a Zoom meeting recently and when the topic of new research came up another participant, rather rudely and dismissively, asked “what is the point of research, why don’t we just get on and...
View ArticleThe Importance of Volunteering
This month’s blog is about Volunteering as we celebrate 40 years of Volunteering week in the first week of June 2024. The Pernicious Anaemia Society is run by a small team of volunteers who give their...
View ArticleHope and Psychology in Wellness – Pernicious Anaemia
This month’s blog post is written by Dr Heidi Seage. Principal Lecturer in Health Psychology and Programme director MSc in Health Psychology at Cardiff School of Sport and Health Sciences, Heidi has...
View ArticleA Pharmacy Perspective – Empathy And Compassion
This month’s blog post is a contribution from Dr Nicola Ward, Associate Professor in Pharmacy at Leicester School of Pharmacy, De Montfort University. Nicola is a long-time ally of the Pernicious...
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B Vitamins: The Essential Crew of Superheroes Keeping Your Body Running Smoothly
I was talking to someone in the medical field the other day about vitamin B12 and they commented: “Oh yes! B vitamins they are all the same aren’t they and you get them in your cereal.” I felt deflated...
View ArticleHealth Inequality in Long-term Conditions
This months’ blog post from CEO Katrina Burchell discussed health inequalities from the perspective of the condition. The diagnosis and treatment of people with Pernicious Anaemia in the UK and on the...
View ArticleResearch priorities for B12 patients
By Dr. Willemina Rietsema In conjunction with the Pernicious Anaemia Society, The James Lind Alliance conducted a priority setting process for research into the autoimmune condition called Pernicious...
View ArticleThe NICE B12 guideline – has anything changed?
In this month’s blog post our CEO, Katrina Burchell, looks at how NICE Guidelines should improve things for patients with a review of how NICE is supposed to work and a summary of what the Pernicious...
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Low vitamin B12 associated with restless leg syndrome
By Dr. Willemina Rietsema In restless legs syndrome, (sometimes written as RLS), people get a feeling like their legs are crawling with ants, tingling, burning, itching or cramping. These feelings...
View ArticleThe NHS Delivery Plan for Access to Primary Care
In the UK, one of the most common complaints we see from our members is about access to doctors and nurses in primary care. Not just for diagnosis but for their ongoing treatment with injections as...
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