The Importance of Volunteering
This month’s blog is about Volunteering as we celebrate 40 years of Volunteering week in the first week of June 2024. The Pernicious Anaemia Society is run by a small team of volunteers who give their...
View ArticleHope and Psychology in Wellness – Pernicious Anaemia
This month’s blog post is written by Dr Heidi Seage. Principal Lecturer in Health Psychology and Programme director MSc in Health Psychology at Cardiff School of Sport and Health Sciences, Heidi has...
View ArticleA Pharmacy Perspective – Empathy And Compassion
This month’s blog post is a contribution from Dr Nicola Ward, Associate Professor in Pharmacy at Leicester School of Pharmacy, De Montfort University. Nicola is a long-time ally of the Pernicious...
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B Vitamins: The Essential Crew of Superheroes Keeping Your Body Running Smoothly
I was talking to someone in the medical field the other day about vitamin B12 and they commented: “Oh yes! B vitamins they are all the same aren’t they and you get them in your cereal.” I felt deflated...
View ArticleHealth Inequality in Long-term Conditions
This months’ blog post from CEO Katrina Burchell discussed health inequalities from the perspective of the condition. The diagnosis and treatment of people with Pernicious Anaemia in the UK and on the...
View ArticleResearch priorities for B12 patients
By Dr. Willemina Rietsema In conjunction with the Pernicious Anaemia Society, The James Lind Alliance conducted a priority setting process for research into the autoimmune condition called Pernicious...
View ArticleThe NICE B12 guideline – has anything changed?
In this month’s blog post our CEO, Katrina Burchell, looks at how NICE Guidelines should improve things for patients with a review of how NICE is supposed to work and a summary of what the Pernicious...
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Low vitamin B12 associated with restless leg syndrome
By Dr. Willemina Rietsema In restless legs syndrome, (sometimes written as RLS), people get a feeling like their legs are crawling with ants, tingling, burning, itching or cramping. These feelings...
View ArticleThe NHS Delivery Plan for Access to Primary Care
In the UK, one of the most common complaints we see from our members is about access to doctors and nurses in primary care. Not just for diagnosis but for their ongoing treatment with injections as...
View ArticleTaking Control of Your Health: Accessing and Understanding Your Medical Records
This month’s blog post is about accessing your medical records to help you advocate for yourself. The authors are PAS CEO Katrina, our USA and Australian based Support Group Hosts Julie and Martine and...
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